Study News

Wednesday 30th October 2013

We’re Half Way There! 

We’re now half way through our four year research project! The last two years have been very exciting. Tiina and I have met a lot of people who have helped us out by volunteering for our research. We’ve now scanned 33 people, so we’re also over half way to achieving our goal of 60 scans! But we’re not quite there yet. We still need around another 27 people to visit Cambridge to have their brains scanned. If you would like to take part, or if you know anyone who would, please get in touch for more information about the study!

As we approach the half way mark, we hope to start taking a look at the information we have collected so far. It might be a little while yet before we can publish anything in a scientific journal, but when the results are published we will let you know here. Watch this space!

Liam. 

 

Summer heatwave!

Summer has finally arrived and temperatures are soaring!  We hope you enjoyed our Summer Newsletter and that you have some great plans for the sunshine!  We have been really busy here in Cambridge gathering control volunteers for our study.  Control volunteers are people who wanted to help out with the study, but who do not have Down’s syndrome.  We have seen 25 people now and they have all completed their brain scans. 

We are still looking for around another 30 people with Down’s syndrome to help us out with our research.  If you want to help but aren’t sure what it involves please give us a call, we would love to tell you more about it. 

Thanks again to everyone who has already taken part and to everyone who is helping us find more volunteers, we really appreciate it!

Liam and Tiina

 

Friday, 1st March 2013

A spring in our step: We’re half way there!

We have reached our half way point and 31 people have volunteered to take part in our study!  We have seen 29 people at the Wolfson Brain Imaging Centre who have all had pictures taken of their brains.  Thank you to everyone who braved the cold weather to come to Cambridge and for helping us in our mission to Defeat Dementia in Down’s Syndrome! 

We are still looking for another 30 volunteers to help us out with our research.  Our contact details are on this website and we would love to hear from you! 

Thanks to everyone involved who have helped us reach the half way mark, we will keep you updated on how we are getting on! 

Liam and Tiina.

 

Tuesday, 30th October 2012

One year down, three to go!

We are now one year into our research study, and what a year it’s been! Thanks to everyone who took part and helped us make the last year a successful step towards our mission of defeating dementia in Down’s syndrome. But we’re not quite there yet, and we have another three years to go before the project is finished! We’ve seen lots of people since we started, and 21 people have now been to Cambridge to have their brain scans. But we still need about 40 new people to help us! If you or someone you know is interested, we’d love to hear from you. This website contains all the information you need to get in touch, so we hope to hear from you soon! Until then, we’ll keep you updated right here, so don’t forget to stop by whenever you have a minute to see how we’re getting on!

Liam. 

 

Monday, 3rd September 2012

The Down’s Syndrome Energy Study.

It’s been a busy summer here in Cambridge for the Down’s syndrome research group. Almost 20 people have visited Liam and Tiina in Cambridge to have brain scans, and there are more on their way over the next couple of weeks! But we still need more people to come and help us, so please do get in touch if you’re interested. 

It’s also been a busy summer for Kate, who has been setting up a new Down’s syndrome project. Kate wants to know why some people with Down’s syndrome find it difficult to do exercise. She thinks that people with Down’s syndrome might have problems with their mitochondria (click HERE to hear how this word sounds). These are like ‘little energy factories’ inside our cells which help us to make energy. Kate would like people with Down’s syndrome to help with her research by coming to Cambridge and doing some exercise. If you would like to know more about Kate’s study, you can click on HERE. I know she would love to hear from you!

Thanks for keeping up to date with our study, and there’ll be more news soon about how we’re getting on with our work to defeat dementia in Down’s syndrome! 

Liam. 

 

Friday, 6th July 2012

Full steam ahead! 

We’re now well under way with our project, and Tiina and I have been very busy indeed since our last update. We’ve been plodding on through wind and rain, visiting people all over England. There are now 21 people who have volunteered for our study, and 12 of those people have already been to visit us at the Wolfson Brain Imaging Centre in Cambridge. At this point, we’d just like to say a big thank you to all of those ladies and gentlemen who have helped us out so far, you’ve been fantastic!

So now we are going full steam ahead, but the search for volunteers is still on! We need lots more people to help us complete our project, so if you’re interested please get in touch, and help us to Defeat Dementia in Down’s Syndrome!

Liam 

 

Friday, 27th April 2012

A strangely dry spa day in Cambridge

It has been another busy busy month for Liam and I. We have found ourselves driving by the beautiful scenery of The Cotswold landscape (not that we are complaining!) and explored the small towns of Suffolk and Norfolk counties. Unfortunately, we have mostly been accompanied by clouds and rain with an odd sunny day a week. So there has been even more reasons to shelter in the Wolfson Brain Imaging Centre in Cambridge, where the kettle is always warm and the beds of the scanners are comfortable and welcoming. At least this is what we believe. We hope that the two individuals, who visited the brain imaging centre with us, feel the same. After all, they were the lucky ones who had a chance to relax on the comfy beds while listening to their favourite music..We hope it felt more like a strange dry spa break, now who wouldn’t want that? Mmm (dreaming..)

Tiina

 

Thursday, 29th March 2012

Twelve is the magic number

A warm welcome to our followers! It has been the most sunniest and warmest week in March – I hope you all have had plenty of chances to soak up the sun! Liam and I, on the other hand, have been seeing the sun mostly through the windows of our car as we have been extremely busy with driving to visit our participants all across the eastern counties and beyond! Nevertheless, it is a great pleasure to announce that we have successfully recruited and consented 12 individuals with Down’s syndrome, whom have very kindly agreed to help us with the study. We have been treated very well at our participants’ homes and greeted with cakes, biscuits and tea -more than we would ever expect! So thank you very much for the families for being so kind to us and for giving us a chance to tell you, why we are so passionate about what we do.

I take my hat off to you, the 12 participants and their families, for sharing our passion and for helping us Defeat Dementia in Down’s Syndrome!

Tiina

 

Wednesday, 8th February 2012

The prologue

Today is a happy day for our research team – an article about ‘Defeat Dementia in Down’s Syndrome’ study was published on Cambridge University website and in Business Weekly. In addition, Cambridge News and Disabled and Supportive Care (D&SC) magazine have also expressed interest in featuring the article. We are glad that we can bring public’s attention to the importance of this research and to the implications the results of this study might have in the future. On the same happy note, we are glad to announce that we have officially moved into recruitment phase and have already consented two adults with Down’s syndrome, whom have agreed to participate in this research! Hopefully, more people will be able to help us in the future towards our goal of defeating dementia in Down’s syndrome!

Tiina