- Continuation of study Monday, January 19, 2015 - We are happy to announce that we have reached our recruitment target. Thank you so much to all the volunteers and to everyone whose hard work and determination made this possible! Initial analyses of the data are very promising and we are hopeful that in the future, these results could lead to facilitating early diagnosis […]
- Participant feedback Monday, December 9, 2013 - We have received some very nice feedback from our volunteers recently, we are really pleased that everyone is enjoying the experience! “Thank you for looking after us all so well last weekend. We all thoroughly enjoyed coming over again” “Thank you to you all for making our stay so comfortable. It has been an honour to help in your […]
- End of energy study party! Monday, December 9, 2013 - In September we held our Energy Study Party at Addenbrooke’s Hospital. Thank you so much to everyone who was able to make it, we hope you had a good time and enjoyed all the food – we did! We are very close to finishing the energy study now as we have done really well and […]
- It’s summer time! Tuesday, July 16, 2013 - We have finally got some fantastic weather; we hope you are all out enjoying it! We are doing really well in our Energy in Down’s syndrome study, and have had 27 people complete the study, just a few more to go – thank you so much!! We are also very excited to be starting the […]
- Leg scans, follow-up studies and other news Sunday, March 24, 2013 - In the last month a further 4 people have been to Addenbrooke’s hospital and 6 people have also had their legs scanned at the Wolfson Brain Imaging Centre. You can see some of their pictures in our gallery. We now have 17 people who have finished our study and we have 27 people who want to […]
- Volunteers! Wednesday, March 13, 2013 - The energy study has been really busy so far and 23 fantastic people have volunteered to take part. 16 people have been to the hospital and had their skeletons photographed and exercised on the running machine for us – we hope they all had fun doing this! We have also seen 11 of these volunteers […]
To see pictures of some of our
volunteers at Addenbrooke’s, click here
Monday 7th October 2013
End of energy study party!
In September we held our Energy Study Party at Addenbrooke’s Hospital. Thank you so much to everyone who was able to make it, we hope you had a good time and enjoyed all the food – we did! We are very close to finishing the energy study now as we have done really well and almost reached our target of 30 people.
The next thing to concentrate on is the muscle study, so far we have had 16 volunteers for this study and we would like to get just a few more if we can – so if you are interested please let us know! In December, Kate will be spending 3 months in Newcastle looking at the results of this study.
We are looking forward to being able to give you some feedback on the results of these studies, hopefully by around this time next year. Thanks again for all your help!!
Tuesday 16th July 2013
It’s summer time!
We have finally got some fantastic weather; we hope you are all out enjoying it! We are doing really well in our Energy in Down’s syndrome study, and have had 27 people complete the study, just a few more to go – thank you so much!!
We are also very excited to be starting the second part of our Energy study, which involves looking at your muscles much more closely, lots of people have already volunteered to take part in this but we still need a few more! If you are interested give Kate a call on 01223 746190.
Last but not least, we hope you all got the invitation to our party on 13th September! This will be a great chance to meet some of the other people who have taken part in the same study as you and have some fun! Please let Maddie know if you can come on 01223 746172, we really hope you can make it!
Participant feedback
We have received some very nice feedback from our volunteers recently, we are really pleased that everyone is enjoying the experience!
“Thank you for looking after us all so well last weekend. We all thoroughly enjoyed coming over again”
“Thank you to you all for making our stay so comfortable. It has been an honour to help in your research.”
Jonathan writes a blog and has written about his experiences in the study, you can read this here
Jack has also written a blog about his time here, click here to read what he thought
Wednesday 24th March 2013
In the last month a further 4 people have been to Addenbrooke’s hospital and 6 people have also had their legs scanned at the Wolfson Brain Imaging Centre. You can see some of their pictures in our gallery. We now have 17 people who have finished our study and we have 27 people who want to take part. We are getting really close to our target of finding 30 people. Thank you so much, if you know anyone who would like to take part please send them our way!!
In other news, we are planning a follow up study! We will be looking at muscle cells. If you would like to know more about this study please get in touch with Kate on 01223 746190 or km511@medschl.cam.ac.uk – thank you!
Wednesday 13th March 2013
The energy study has been really busy so far and 23 fantastic people have volunteered to take part. 16 people have been to the hospital and had their skeletons photographed and exercised on the running machine for us – we hope they all had fun doing this! We have also seen 11 of these volunteers again when they had their leg scanned in the special scanner.
We still need a few more volunteers for our study. If you are over 18 years old and have Down’s syndrome, or know somebody who is and would like to get involved, please give us a call, we would love to hear from you!
We will keep updating our progress on this website, so keep checking to see how we are getting on!
Maddie
